Seven year old TJ from Sittingbourne suffers with Pitt Hopkins Syndrome, something that affects 4 in every million born in the UK. He also has Profound Global Development Delay, Chromosome deletion, as well as partial hearing, poor eyesight and a low immune system.
His parents first became aware something was wrong when TJ was 9 weeks old. His mum Melissa Wiseman said, “He wasn’t making the usual baby noises and something didn’t seem quite right right”. Soon after he saw a health visitor and was referred to a consultant when he was one year old. TJ didn’t walk until he was five years old and even now walks with some difficulty using specially made boots to support his legs.
Melissa previously funded a wheelchair to provide some mobility, but because of TJ’s condition, it soon became apparent that it wasn’t ideal and needed to be reclining. A Facebook page to raise awareness and funding led to a Just Giving page. Melissa even went live on Sheppey FM to help her appeal and this led to them putting her in contact with Red Eagle Foundation, a new charity that helps children with bespoke mobility equipment that is not funded by the NHS. Delivered six weeks after being measured up, TJ’s mum said, “The wheelchair is ideal for short outings, it’s lightweight, folds up easily and fits in the car boot. TJ loves it and feels snug, comfortable and with the five-point harness, feels very safe – I’m really grateful to the Red Eagle Foundation for stepping in and providing the funding for the wheelchair.”
Charity Chairman, Wayne Hodgson commented, “We recently held a golf day supported by many Kent businesses and raised over £12,000 to help young people like TJ. I’m delighted that their efforts have been rewarded.”
Melissa is still looking for people to help her raise money for a special bed costing over £10,000. If you feel you can help please visit her fundraising page and donate at: